QUANTUM PROJECT

Quality, Utility and Maturity Measured; Developing a Data Quality and Utility Label for HealthData@EU

QUANTUM aims at developing and implementing a label mechanism that could be ideally adopted in the future HealthData@EU.

QUANTUM builds on 5 technical work packages (WP). WP1 conceptualises and provides technical specifications for a data quality, utility, and maturity label. WP2 designs and tests, at small-scale, the label. WP3 implements the labelling mechanism in a number of data holders. WP4 engages the data quality users’ community; and, WP5 outreaches other interested parties, including other initiatives building HealthData@EU.

Expected results: A common concept of datasets Quality and Utility and Data holders’ Maturity, Technical specifications for the label, A conformance checking tool that yields the label, An implementation report of the label mechanism, Recommendations for a large-scale implementation of the QUANTUM label mechanism, The QUANTUM Exchange Platform and Academy as instruments for capacity building.

For this purpose, 27 beneficiaries, 5 affiliated entities and 3 associated partners. The composition of the Consortium seeks to reflect the different roles and institutions in the governance of the HealthData@EU; virtually consider all types of data and science of interest; and gather the expertise of previous outstanding projects in the domain.

Project Coordinator

The coordinating institution is Instituto Aragonés de Ciencias de la Salud- IACS

PI: Enrique Bernal-Delgado MD PhD (orcid.org/0000-0002-0961-3298 )
Senior Health Services and Policy Researcher
Data Science for Health Services and Policy Research Group

WPs Coordinator

Institute for Health Sciences (IACS) coordinate WP3 Mid-scale implementation of the label; WP6 Coordination, evaluation and management; WP7 Ethics requirements

Funding

This project has received funding from the European Union’s Horizon Europe Framework Programme under grant agreement No 101137057

Period: 01/01/2024 – 30/06/2026

cordis.europa.eu/project/id/101137057

More information:  

www.quantumproject.eu

  • IACS coordinate Quantum Consortium

    Developing a Data Quality and Utility Label for HealthData@EU

    www.quantumproject.eu/

  • 35 entities participants from 13 European countries

    Consortium: For this purpose, 27 beneficiaries, 5 affiliated entities and 3 associated partners

    www.quantumproject.eu/

  • IACS coordinate WP Mid-scale implementation of the label

    Institute for Health Sciences (IACS) coordinate WP3 Mid-scale implementation of the label; WP6 Coordination, evaluation and management; WP7 Ethics requirements

    www.quantumproject.eu/



IACS coordinate WP3: Mid-scale implementation of the label

This WP aims at deploying the tool developed in a larger group of data holders participating in the project.
This WP also includes the assessment of the implementation process where data holders will provide insights for transferability and sustainability; thus, providing guidance for the eventual delegation and implementation acts derived from the application of the legislative proposal for the HealthData@EU, as in article 56.



IACS coordinate WP6: Coordination, evaluation and management

The general objective of WP6 isto provide efficient management and coordination of both the project and the consortium, as well as to ensure a timely project implementation, in line with its planned objectives, and a continuous evaluation.



IACS coordinate WP7: Ethics requirements

The objective is to ensure compliance with the ‘ethics requirements’ set out in this work package.



RESULTS

a) A common concept of datasets Quality and Utility and Data holders’ Maturity

b) Technical specifications for the label (Deliverable D1.1. and D1.2)

c) A conformance checking tool that yields the label (D2.1)

d) An implementation report of the label mechanism (D3.1)

e) Recommendations for a large-scale implementation of the QUANTUM label mechanism (D3.2)

f) The QUANTUM Exchange Platform and Academy (D4.2 and D4.3) as instruments for capacity building.

NEXT OUTPUTS will be publised in:

 All outputs: www.cienciadedatosysalud.org/tipo-publicacion/quantum/

All WPs Results of the QUANTUM project: www.quantumproject.eu



QUANTUM ACADEMY

› Join the QUANTUM academy! QUANTUM’s interesting insights on Data quality

› Are you a data holder or a data user? Find here precious resources about data quality in QUANTUM academy

› QUANTUM aim to build capacity in terms of data quality. This includes the upcoming QUANTUM Academy course. Stay tuned for more information



QUANTUM CONSORTIUM



GALLERY