Data Science for Health Services and Policy Research

CONCEPT Project

CONCEPT is a coordinated research initiative made up of five projects within the framework of REDISSEC – Spanish Research Network on Health Services and Chronic Diseases; and RICAPPS – Research Network on Chronicity, Primary Care and Health Promotion.

The objective of CONCEPT is to study the effectiveness and efficiency of chronic care in the Spanish National Health System: a multi-cohort study with real-world data.

Specifically, how care is provided to patients with diabetes CONCEPT-DIABETES, to long-term breast cancer survivors CONCEPT-SURBCAN, to patients with heart failure CONCEPT-Heart Failure and to those with acute ischaemic stroke CONCEPT-STROKE.

CONCEPT projects will address research questions related to the effectiveness and efficiency (i.e. appropriateness, quality or health outcomes and costs) with which chronic care is provided in the context of the Spanish healthcare system.

CONCEPT comprises five sub-projects, four analysing the care provided for four highly prevalent chronic diseases and a fifth CONCEPT-COST, focusing on economic analyses of all other projects. The CONCEPT projects are based on the actual exposure of patients when they come into contact with different healthcare providers and the consequences of this exposure, using real-world data (RWD) as the research substrate.

CONCEPT Project Coordinator

Enrique Bernal-Delgado MD PhD
Investigador Senior en políticas y servicios sanitarios
Ciencia de datos para la investigación en servicios y políticas sanitarias
Instituto Aragonés de Ciencias de la Salud. IACS

Funding

Instituto de Salud Carlos III
Fondo de Investigaciones Sanitarias PI19/00154
Period: 3 years (2020)

SUBPROJECTS

CONCEPT-STROKE

The care received by patients with acute ischaemic stroke is analysed.
In stroke care, the aim is to show the relevance of care pathways on health outcomes and the efficiency of stroke care.

Enrique Bernal-Delgado

Resumen

CONCEPT-DIABETES

The care received by patients with diabetes is analysed.
It evaluates the effectiveness of clinical practice and quality improvement strategies at patient, health care provider and health system level on process and health outcomes of patients with type 2 diabetes using process mining.

Berta Ibáñez Beroiz

Resumen

CONCEPT-SURBCAN

It analyses the care received by female breast cancer survivors.
It evaluates the effectiveness and efficiency of health care in long-term breast cancer survivors and identifies the preferences and unmet needs of patients and professionals to improve the care provided during breast cancer survivorship.

María Sala Serra

Resumen

CONCEPT-Heart Failure

It analyses the care received by patients with heart failure.
It analyses the effectiveness of the care process experienced by patients with Heart Failure (HF) in three health systems in the country.

Raúl Quirós López

Resumen

CONCEPT-COST

Economic analysis of the CONCEPT projects. Complements the results produced by each CONCEPT clinical cohort, with a comprehensive approach to economic analysis based on RWD, including costs incurred, avoidable costs and the evaluation of the efficiency of the care pathways identified.

Cristina Valcárcel Nazco

Resumen

CONCEPT OUTPUTS

CONCEPT RESEARCHERS

CONCEPT STROKE Participants

IP: Enrique Bernal-Delgado

Enrique	Bernal	Delgado	https://orcid.org/0000-0002-0961-3298	IACS, Aragón. FIISA, Aragón
Francisco Ramón	Estupiñán	Romero	https://orcid.org/ 0000-0002-6285-8120	IACS, Aragón. FIISA, Aragón
Lidia	García	Pérez	https://orcid.org/0000-0002-5626-8116	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Javier	González	Galindo	https://orcid.org/0000-0002-8783-5478	IACS, Aragón
Carmen	Guirado	Fuentes	https://orcid.org/my-orcid?orcid=0000-0002-4578-8204	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Ramon	Launa	Garces	https://orcid.org/	IACS, Aragón
julian	librero	lopez	https://orcid.org/ 0000-0002-4859-9054	FMS, Navarra
Natalia	Martínez	Lizaga	https://orcid.org/ 0000-0002-9586-7955	IACS, Aragón. FIISA, Aragón
Eduardo	Millán	Ortuondo	https://orcid.org/ 0000-0002-9688-9304	Osakidetza, País Vasco
Benjamín	Rodríguez	Díaz	https://orcid.org/0000-0002-7540-8268	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FCIISC)
Cristina	Valcárcel	Nazco	https://orcid.org/0000-0003-4833-7967	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)

CONCEPT DIABETES Participants

IP: Berta Ibáñez-Beroiz

Ester	Angulo	Pueyo	https://orcid.org/0000-0001-7442-3450	IACS, Aragón
Francisco Ramón	Estupiñán	Romero	https://orcid.org/ 0000-0002-6285-8120	IACS, Aragón. FIISA, Aragón
Lidia	García	Pérez	https://orcid.org/0000-0002-5626-8116	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Javier	González	Galindo	https://orcid.org/0000-0002-8783-5478	IACS, Aragón
Carmen	Guirado	Fuentes	https://orcid.org/my-orcid?orcid=0000-0002-4578-8204	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Berta	Ibáñez	Beroiz	https://orcid.org/0000-0002-7797-4845	FMS, Navarra. Nuestra afiliación oficial es Navarrabiomed – Hospital Universitario de Navarra – UPNA – IdiSNA
julian	librero	lopez	https://orcid.org/ 0000-0002-4859-9054	FMS, Navarra
Eduardo	Millán	Ortuondo	https://orcid.org/ 0000-0002-9688-9304	Osakidetza, País Vasco
Benjamín	Rodríguez	Díaz	https://orcid.org/0000-0002-7540-8268	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FCIISC)
Cristina	Valcárcel	Nazco	https://orcid.org/0000-0003-4833-7967	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)

CONCEPT SURBCAN Participants

IP: María Sala Serra

David	Abbad	Gómez	https://orcid.org/ 0000-0000-0000-8000	IMIM, Cataluña. Servicio de Epidemiología y Evaluación del Hospital del Mar de Barcelona
Mercè	Comas	Serrano	https://orcid.org/0000-0003-1926-2740	IMIM, Cataluña
Mercè	Comas	Serrano	https://orcid.org/ 0000-0003-1926-2740	IMIM, Cataluña
Francesc	Cots	Reguant	https://orcid.org/ 0000-0003-0238-8902	IMIM, Cataluña. Control de gestión del Parc de Salut Mar de Barcelona
Laia	Domingo	Torrell	https://orcid.org/ 0000-0003-4420-0891	IMIM, Cataluña. Servicio de Epidemiologia y Evaluación del Hospital del Mar de Barcelona
Talita	Duarte	Salles	https://orcid.org/ 0000-0002-8274-0357	Otra afiliación. Fundació Institut Universitari per a la recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol)
Francisco Ramón	Estupiñán	Romero	https://orcid.org/ 0000-0002-6285-8120	IACS, Aragón. FIISA, Aragón
Lidia	García	Pérez	https://orcid.org/0000-0002-5626-8116	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Javier	González	Galindo	https://orcid.org/0000-0002-8783-5478	IACS, Aragón
Carmen	Guirado	Fuentes	https://orcid.org/my-orcid?orcid=0000-0002-4578-8204	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Berta	Ibáñez	Beroiz	https://orcid.org/0000-0002-7797-4845	FMS, Navarra. Nuestra afiliación oficial es Navarrabiomed – Hospital Universitario de Navarra – UPNA – IdiSNA
Anna	Jansana	Riera	https://orcid.org/ 0000-0001-8504-1618	Otra afiliación. International Agency for Research on Cancer (WHO)
julian	librero	lopez	https://orcid.org/ 0000-0002-4859-9054	FMS, Navarra
Natalia	Martínez	Lizaga	https://orcid.org/ 0000-0002-9586-7955	IACS, Aragón. FIISA, Aragón
María Concepción	Moreno	Iribas	https://orcid.org/ 0000-0001-6537-0131	FMS, Navarra. Instituto de Salud Pública y Laboral de Navarra
María del Carmen	Padilla	Ruíz	https://orcid.org/ 0000-0002-2321-9211	Hospital Costa del Sol, Andalucía
María Victoria	Pico	Soler	https://orcid.org/ 0000-0002-7906-8707	IACS, Aragón
Beatriz	Poblador	Plou	https://orcid.org/my-orcid?orcid=0000-0002-5119-5093	IACS, Aragón
Benjamín	Rodríguez	Díaz	https://orcid.org/0000-0002-7540-8268	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FCIISC)
Maria	Sala	Serra	https://orcid.org/ 0000-0002-9955-8746	IMIM, Cataluña
Teresa	Sanz	Cuesta	https://orcid.org/ 0000-0001-8791-8030	Gerencia AP, Madrid
José Martín	Solórzano	González	https://orcid.org/ 0000-0001-9628-9256	Otra afiliación. Universitat Pompeu Fabra
Ana	Toledo	Chávarri	https://orcid.org/ 0000-0003-2395-3907	SESCS, Islas Canarias. Fundación Canaria de Investigación Sanitaria
Cristina	Valcárcel	Nazco	https://orcid.org/0000-0003-4833-7967	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)

CONCEPT INSUFICIENCIA CARDIACA Participants

IP: Raúl Quirós López

Francisco Ramón	Estupiñán	Romero	https://orcid.org/ 0000-0002-6285-8120	IACS, Aragón. FIISA, Aragón
Lidia	García	Pérez	https://orcid.org/0000-0002-5626-8116	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Javier	González	Galindo	https://orcid.org/0000-0002-8783-5478	IACS, Aragón
Carmen	Guirado	Fuentes	https://orcid.org/my-orcid?orcid=0000-0002-4578-8204	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Berta	Ibáñez	Beroiz	https://orcid.org/0000-0002-7797-4845	FMS, Navarra. Nuestra afiliación oficial es Navarrabiomed – Hospital Universitario de Navarra – UPNA – IdiSNA
Nicolás	Jiménez	García	https://orcid.org/0000-0002-6839-0303	Hospital Costa del Sol, Andalucía
julian	librero	lopez	https://orcid.org/ 0000-0002-4859-9054	FMS, Navarra
Eduardo	Millán	Ortuondo	https://orcid.org/ 0000-0002-9688-9304	Osakidetza, País Vasco
Raúl	Quirós	López	https://orcid.org/ 0000-0002-2802-2477	Hospital Costa del Sol, Andalucía. Hospital Costa del Sol, Marbella.
Benjamín	Rodríguez	Díaz	https://orcid.org/0000-0002-7540-8268	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FCIISC)
Cristina	Valcárcel	Nazco	https://orcid.org/0000-0003-4833-7967	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)

CONCEPT COST Participants

IP: Cristina Valcárcel Nazco

Francisco Ramón	Estupiñán	Romero	https://orcid.org/ 0000-0002-6285-8120	IACS, Aragón. FIISA, Aragón
Lidia	García	Pérez	https://orcid.org/0000-0002-5626-8116	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
Javier	González	Galindo	https://orcid.org/0000-0002-8783-5478	IACS, Aragón
Carmen	Guirado	Fuentes	https://orcid.org/my-orcid?orcid=0000-0002-4578-8204	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)
julian	librero	lopez	https://orcid.org/ 0000-0002-4859-9054	FMS, Navarra
Eduardo	Millán	Ortuondo	https://orcid.org/ 0000-0002-9688-9304	Osakidetza, País Vasco
Benjamín	Rodríguez	Díaz	https://orcid.org/0000-0002-7540-8268	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FCIISC)
Pedro	Serrano	Aguilar	https://orcid.org/	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FCIISC)
Cristina	Valcárcel	Nazco	https://orcid.org/0000-0003-4833-7967	SESCS, Islas Canarias. Fundación Canaria Instituto de Investigación Sanitaria de Canarias (FIISC)