The European project, HealthData@EU Pilot, started in 2022 and has a duration of two years. It is co-funded by the EU4Health programme.
HealthData@EU Pilot will build a pilot version of the European Health Data Space (EHDS) infrastructure for secondary use of health data “HealthData@EU” for research, innovation, policy making and regulation.
The project will connect data platforms in one infrastructure and develop support services for research projects using health data from several EU Member States. It will also provide guidelines on data standards, data quality, data security and data transfer to support this cross-border infrastructure. Priority services include a metadata discovery service and a common request for access to health data. The consortium will work closely with the European Commission and its team developing core services for secondary use of health data.
This project involves 17 partners. It is led by the Health Data Hub. IACS participates in WP 8 ‘Data interoperability, quality and protection’, led by BBMRI-ERIC. Web: https://ehds2pilot.eu/
The research group participates in the Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS) within the AES call for Cooperative Research Networks Oriented to Health Outcomes (RICORS). File: RD21/0016/0023.
Funding Entity: Instituto de Salud Carlos III (ISCIIII).
Call 2021 of the Strategic Action in Health 2017-2020, charged to the European funds of the Recovery, Transformation and Resilience Plan.
Period: 2022 to 2024
Web: www.ricapps.es
The mission of BY-COVID is to mobilise open data, enable linkage and access to data through the European COVID-19 Data Portal, and use this data to support a comprehensive response to the threat of SARS-CoV-2 variants.
The main objective of the project is to ensure that data on SARS-CoV-2 and other infectious diseases can be located and used.
The project, led by ELIXIR, has 53 partners from 20 European countries. BY-COVID will run for three years and is part of the European Commission’s HERA incubator scheme “Anticipating the threat of COVID-19 variants together”.
The Aragon Institute of Health Sciences (IACS) participates in the project by leading a work package on finding solutions to address research questions that arise during pandemics. In addition, IACS will actively participate in another work package on heterogeneous data access to process data from COVID-19 and future pandemics. Web: https://by-covid.org/
European Union’s Health Programme (2014-2020)
Coordinator: Suomen itsenäisyyden juhlarahasto (Sitra)
Period: 30 month (begining: 01/02/2021)
The Joint Action helps Member States and the Commission to develop an ecosystem in which health data is shared more freely, boosting citizens’ well-being, the public health system, disease treatment, research and innovation activities in Europe.
IACS is leading WP6 “Excellence in data quality”, led by Enrique Bernal-Delgado.
WP6 will be providing solutions for the trustworthy secondary use of health and health care data with a view to fostering the digital transformation of the European health systems.
IACS is also leading WP7 “Connecting the dots”, led by Juan González García.
This work package will detail the technical options to provide an effective secondary use of health data through the EHDS. In this way, these solutions represent the technical interoperability elements of the EHDS, according to the European Interoperability Framework. Web: https://tehdas.eu/
European Comission
Coordinator: Instituto Aragonés de Ciencias de la Salud (IACS)
PI: Juan González-García
Period: 30 month (beginning: 01/03/2021)
HealthyCloud has been organized around four fundamental objectives that cover 1) interactions with stakeholders to ensure their voices are included as part of the Strategic Agenda; 2) the inclusion of Ethical, Legal and Societal aspects in the design of the future HRIC ecosystem; 3) the sustainable access, use and re-use of health-related data considering a progressive adoption of the FAIR principles; and 4) the technological solutions in terms of computational facilities and mechanisms to enable distributed health data analysis across Europe.
The ultimate goal is to propose an ecosystem that builds and reinforces the trust of patients and citizens in the use of their health data for research.
HealthyCloud is a 30-month project that brings together 21 organizations with broad and yet complementary
expertise, including 5 Research Infrastructures (ELIXIR, ECRIN, EATRIS, BBMRI and Euro-BioImaging) and 3 Joint
Actions (InfAct, iPAAC and eHAction) related to health research. Web: https://healthycloud.eu/
European Comission
Coordinator: Sciensano
Period: 36 months (beginning: 01/ 11/ 2020)
A structured European mechanism for COVID-19 exchange to organize and share information between countries is urgently needed, especially in the area of population health. Information on the broader impacts of COVID-19 on the health of populations is needed to facilitate multidisciplinary European research and underpin decision making.
PHIRI aims to facilitate and support open, interconnected, and data- driven research through the sharing of crosscountry COVID-19 population health information and exchange of best practices related to data collection, curation, processing, use and reuse following ELSI and FAIR principles. It has the objective: to provide a Health Information portal for COVID-19 with FAIR catalogues on health and health care data, to provide structured exchange between countries on COVID-19 best practices and expertise, and to promote interoperability and tackle health information inequalities.
IACS lead th WP7 “Building a federated research infrastructure for a rapid policy response”
As an overarching goal WP7 aims to create and validate a federated research infrastructure that overcomes data reuse
& data sharing hindrances for rapid policy relevant research response to the evolving pandemic. Web: https://www.phiri.eu/
Instituto de Salud Carlos III PI19/00154
PI: Enrique Bernal
Period: 3 years
Funding: 99.220 €
CONCEPT-STROKE is part of CONCEPT, a coordinated research initiative integrating four vertical projects (i.e., four patients’ cohorts), a horizontal project on economic evaluation, and two cross-cutting tasks; under the umbrella of REDISSEC, the Spanish Research Network on Health Services Research and Chronic Conditions [www.redissec.com], funded by the Institute of Health Carlos III and the European Fund for Regional Development. CONCEPT aims at analysing chronic care effectiveness and efficiency in several cohorts using real-world data (RWD).
It is an international collaborative project, led by the Harvard T.H. Chan School of Public Health and has 13 other partners from North America, Europe and the Pacific. The Aragon Institute of Health Sciences participates in this project.
This collaboration started in 2018, builds on regional and national data, creating a supportive response by providing key policy insights on how to address rising costs and improve patient outcomes in different health systems.
ICCONIC hopes to develop a novel methodology to compare the cost, utilisation and outcomes of high-need, high-cost populations in different health systems. More information: hnhccomparisoncollaborative.wordpress.com/our-partners/
REDISSEC
REDISSEC: Servicios de Salud Orientados a Enfermedades Crónicas
Coordinator: José Mª Quintana López. Kronikgune
Funding: Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias RD16/0001/0007
Period: 3 años (inicio: 2017)
Program 1
Caracterización de la cronicidad y evaluación del desempeño y las políticas sanitarias en el cuidado de los pacientes crónicos
Coordinator: José Mª Quintana López
WP1: Caracterización de la cronicidad y evaluación de los cuidados sanitarios
WP2: Desempeño de los Servicios Sanitarios en respuesta a la cronicidad
WP3: Métodos para el manejo de bases de datos, análisis y comunicación de resultados
Program 2
Efectividad y coste-efectividad en el cuidado de los pacientes crónicos
Coordinator: Enrique Bernal-Delgado
WP1: Comparando intervenciones clínicas
WP2: Comparando intervenciones y políticas organizacionales
WP3: Métodos para mejorar la investigación evaluativa
Web: www.redissec.com
More information: cienciadedatosysalud.org/proyectos-de-investigacion/redissec/
Network of Excellence for the development and implementation of innovative models of integrated stroke care (ICTUSNet)
Programa Interreg Sudoe a través del Fondo Europeo de Desarrollo Regional SOE2/P1/E0623
Coordinator: AQUAS
Year 2018. Period: 3 years
Funding: Year 3: 115.050€
ICTUSnet’s general objective is promoting collaboration R&D&I, stimulating mutual learning and encouraging innovation in integrated stroke care. This is accomplished thanks to incorporating new data analysis technologies and creating a permanent network offering all the shareholders involved in the various stages of the healthcare chain the opportunity to share information, lessons learned and good practices.
Various groups and institutions in France, Spain and Portugal. The Aragon Health Sciences Institute (IACS) leads the GT3: ‘Analysing and benchmarking the care plans for patients with stroke’
Joint Action on Health Information - JA InfAct
Coordinator: Sciensano
Año 2018. Period: 3 años
Financiado: 156.101€
La Acción Conjunta sobre Información de Salud tiene como objetivo aunar todos los esfuerzos de los Estados miembros participantes, organizaciones internacionales e instituciones académicas para avanzar hacia un sistema de información en salud sostenible a nivel europeo que promueva la investigación en salud y las políticas de salud.
40 socios de 28 países europeos. IACS participa en el paquete de trabajo 10 sobre Interoperabilidad liderando el pilotaje de casos de estudio de interés para avanzar en la interoperabilidad en salud pública.
CHRODIS-PLUS: Implementing good practices for chronic diseases
Comision Europea: tercer programa de acción europea en el campo de la salud (2014-2020).
Coordinado por el Instituto de Salud Carlos III
Financiado: 43.161€
El proyecto: CHRODIS-PLUS: Implementing good practices for chronic diseases, (num. 761307) tiene por objetivo promover la implementación de innovadoras políticas y prácticas en la gestión de la cronicidad en los países de su ámbito.
Web: http://chrodis.eu/
Care for patients with chronic conditions in the NHS: time-space evolution of potentially avoidable hospitalisations by basic health area and healthcare area
PI Enrique Bernal Delgado
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias. PI 1400786
Year of beginning: 2014
Studying potentially avoidable hospitalisations (PAHs) has been adopted as a strategy for assessing the quality and the efficacy of the care given to patients with chronic conditions. The objective is to describe and map the different time-space evolution in the standardized rate and relative risk of PAHs, while attempting to establish the effect of the basic health areas (vs. healthcare area) on risk, as well as the effect of time-dependent events.
Joint Action on Chronic Diseases (CHRODIS-JA)
Addressing Chronic Diseases and Healthy ageing across the life cycle
Year of begining: 2012
BRIDGE Health Project- Platform for administrative data on health care
Year of begining: 2015
ECHO European Collaboration for Health Care Optimization
European Commission 7th FP 2009
IP Enrique Bernal
Periodo: 42 meses
Financiado: 2.750.000 €
El proyecto, concebido como un estudio piloto sobre bases de datos disponibles e indicadores validados, tiene como objetivo fundamental describir el desempeño de seis sistemas sanitarios europeos (austriaco, danés, esloveno, español, inglés y portugués).
Más información: cienciadedatosysalud.org/echo/
REDISSEC: Health Services for Chronic Conditions
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias RD12/0001/0004
Coordinado por Kronikgune
Período: 4 años
Financiado: 277.600 €
Preparation of a Divestment Strategy for the NHS Based on Monitoring Unjustified Variations in the Use of Procedures of Doubtful Clinical Value.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias. PI12/01884
PI Sandra García-Armesto
Year of begining: 2012
Time-space Evolution of Unjustified Variations in Medical Practice in the NHS.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI06/1673
PI Enrique Bernal
Year of begining: 2007
Atlas of Variations in Medical Practice in the National Health System (Consolidation and New Developments).
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI06/1673
IP Enrique Bernal
Año de comienzo: 2007
Financiado: 102.245 €
Consumption and Expenditure in Psycholeptic and Psychostimulant Drugs in the National Health System.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI07/90608
IP Julián Librero
IC Enrique Bernal
Financiado: 24.200 €
Periodo: 2008
La Seguridad de los Pacientes en el Sistema Nacional de Salud español: Validación de los patient safety indicators para su medición
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI06/90260
IP Enrique Bernal
Financiado: 72.600 €
Periodo: 2007-2008
Variations in Consumption and Expenditure in Cardiovascular Drugs in the National Health System.
Variations in Consumption and Expenditure in Cardiovascular Drugs in the National Health System
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI06/90515
IP Anselmo López Cabañas
Financiado: 20.570 Euros
Periodo: 2007
Validity of Hospital MBDS in Identifying Incident Cases of Specific Cancers: Strategies of MBDS use in assessing healthcare suppliers.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI/042489 (Proyecto Coordinado de RETICS)
IP Enrique Bernal
Financiado: 47.610 Euros
Periodo: 2004-2006
Project on Continuity of the Thematic Healthcare Services Research Network for Decision-Making in the National Health System (RED IRYSS G03/202).
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias 05/2490
(Proyecto Coordinado de RETICS)
IP Enrique Bernal
Financiado: 2.600 Euros
Periodo: 2006
Consolidation and Expansion of a Cooperative Research Model in Epidemiology and Public Health (RCESP).
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI05/2487
(Proyecto Coordinado de RETICS)
IP Enrique Bernal
Financiado: 29.000 Euros
Periodo: 2006
Variations in Knee Arthroplasty in the NHS: The influence of resources available and adverse results related to them.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI04/2489
IP Julián Librero
Financiado: 19.000 Euros
Periodo: 2005
Improvement in Drug Treatment Quality in Secondary Prevention of Ischaemic Heart Disease in Primary Care in the Autonomous Community of Valencia.
Instituto de Salud Carlos III (FIS 04/1357)
PI Peiró S
Year of begining: 2005
Research Network on Epidemiology and Public Health.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias RTIC G03/202
IP: Enrique Bernal (Coordinador del nodo del Instituto Aragonés de Ciencias de la Salud)
Year of begining: 2003
Research Group Network on Results in Health and Healthcare Services.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias RTIC G03/202
IP: Enrique Bernal (Coordinador del nodo del Instituto Aragonés de Ciencias de la Salud)
Financiado: 127.906,60 Euros
Periodo: 2003-2005
Systematic Review of the Efficacy of Interventions to Reduce Informal Caregivers’ Overload.
Evaluación Tecnologías Generalitat Valenciana 002/2001
IP: Peiró S
Year of begining: 2002
Systematic Review of the Quality of Life Following Pancreatic Transplant.
Instituto de Salud Carlos III Evaluación tecnologías 01/10002
IP: Ridao López M
Year of begining: 2002
Quality of Healthcare in Spain. Validation of Inpatient and Preventive Quality Indicators for Their Use in the Spanish National Health System.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI08/90255
IP Enrique Bernal
Financiado: 64.130 €
Periodo: 2008-2009
Edificio CIBA
Avda. San Juan Bosco, 13
50009 Zaragoza
976 715 483
atlasvpm.iacs@aragon.es
cienciadedatosysalud.iacs@aragon.es
Atlas VPM, coordinated by IACS, is recognized by the Spanish Ministry of Health and Social Services and Equality as a privileged source (“Registro de Utilidad”) for the National Health System.
