Paper published in the European Journal of Public Health on the secondary use of health data at European level: perspectives towards EHDS

A recent paper in the European Journal of Public Health analyses the experience of researchers working with health registry data in Denmark, Finland, France and Norway prior to the implementation of the European Health Data Space.

‘User journeys in the secondary use of health data at European level: perspectives towards the European Health Data Space’

As Europe moves towards the implementation of the European Health Data Space (EHDS), it is essential to understand the experiences, needs and challenges of the different user profiles involved in the secondary use of health data at cross-border level. This analysis examines the journeys of users—such as researchers, policymakers and healthcare professionals—in accessing and using health data in European contexts, offering a practical insight that can contribute to the design of a more user-centred, interoperable and effective EHDS.

⇒ Rachel B Forster, Eva Garcia Alvarez, Adrian G Zucco, Enrique Bernal-Delgado, Gayo Diallo, Francisco Estupiñán-Romero, Andrea Ganna, Madeleine Gorman-Asal, Christina Hilmarsen, Petr Holub, Klaus Hoeyer, Arti Rawat, Naja H Rod, Anna-Leena Vuorinen, Tibor V Varga, User journeys in cross-European secondary use of health data: insights ahead of the European Health Data Space, European Journal of Public Health, Volume 35, Issue Supplement_3, September 2025, Pages iii18–iii24, https://doi.org/10.1093/eurpub/ckaf096