The research group coordinates the new project QUANTUM – Data Quality and Utility Labelling, which starts in January 2024. It consists of creating a common data quality labeling system for Europe to facilitate its use for scientific purposes.
It involves 35 entities from 13 different countries, with a budget of €3,905,701.25 euros.
The group Data science for research in health services and policies recognised as a research group of the Government of Aragon, in calls 2017-2019 and 2020-2022, whose PI is Enrique Bernal-Delgado continues to be recognised through this last call 2023-2025 (B02_23R), and therefore receiving a grant to carry out the research activity, detailed below.
The European project, HealthData@EU Pilot, started in 2022 and has a duration of two years. It is co-funded by the EU4Health programme.
HealthData@EU Pilot will build a pilot version of the European Health Data Space (EHDS) infrastructure for secondary use of health data “HealthData@EU” for research, innovation, policy making and regulation.
The project will connect data platforms in one infrastructure and develop support services for research projects using health data from several EU Member States. It will also provide guidelines on data standards, data quality, data security and data transfer to support this cross-border infrastructure. Priority services include a metadata discovery service and a common request for access to health data. The consortium will work closely with the European Commission and its team developing core services for secondary use of health data.
This project involves 17 partners. It is led by the Health Data Hub. IACS participates in WP 8 ‘Data interoperability, quality and protection’, led by BBMRI-ERIC. Web: https://ehds2pilot.eu/
The research group participates in the Research Network on Chronicity, Primary Care and Health Promotion (RICAPPS) within the AES call for Cooperative Research Networks Oriented to Health Outcomes (RICORS). File: RD21/0016/0023.
Funding Entity: Instituto de Salud Carlos III (ISCIIII).
Call 2021 of the Strategic Action in Health 2017-2020, charged to the European funds of the Recovery, Transformation and Resilience Plan.
Period: 2022 to 2024
Web: www.ricapps.es
The mission of BY-COVID is to mobilise open data, enable linkage and access to data through the European COVID-19 Data Portal, and use this data to support a comprehensive response to the threat of SARS-CoV-2 variants.
The main objective of the project is to ensure that data on SARS-CoV-2 and other infectious diseases can be located and used.
The project, led by ELIXIR, has 53 partners from 20 European countries. BY-COVID will run for three years and is part of the European Commission’s HERA incubator scheme “Anticipating the threat of COVID-19 variants together”.
The Aragon Institute of Health Sciences (IACS) participates in the project by leading a work package on finding solutions to address research questions that arise during pandemics. In addition, IACS will actively participate in another work package on heterogeneous data access to process data from COVID-19 and future pandemics. Web: https://by-covid.org/
Instituto de Salud Carlos III PI19/00154
PI: Enrique Bernal
Period: 3 years (2020)
CONCEPT-STROKE is part of CONCEPT, a coordinated research initiative integrating four vertical projects (i.e., four patients’ cohorts), a horizontal project on economic evaluation, and two cross-cutting tasks; under the umbrella of RICAPPS,Research Network on Chronicity, Primary Health Care and Health Promotion, funded by the Institute of Health Carlos III and the European Fund for Regional Development. CONCEPT aims at analysing chronic care effectiveness and efficiency in several cohorts using real-world data (RWD).
It is an international collaborative project, led by the Harvard T.H. Chan School of Public Health and has 13 other partners from North America, Europe and the Pacific. The Aragon Institute of Health Sciences participates in this project.
This collaboration started in 2018, builds on regional and national data, creating a supportive response by providing key policy insights on how to address rising costs and improve patient outcomes in different health systems.
ICCONIC hopes to develop a novel methodology to compare the cost, utilisation and outcomes of high-need, high-cost populations in different health systems. More information: hnhccomparisoncollaborative.wordpress.com/our-partners/
Towards the European Health DAta Space Joint Action- TEHDAS
Towards the European Health DAta Space Joint Action- TEHDAS
European Union’s Health Programme (2014-2020)
Coordinador: Suomen itsenäisyyden juhlarahasto (Sitra)
Periodo: 30 meses (inicio: 01/02/2021)
La Acción Común ayuda a los Estados miembros y a la Comisión a desarrollar un ecosistema en el que los datos sanitarios se compartan más libremente, impulsando el bienestar de los ciudadanos, el sistema de salud pública, el tratamiento de las enfermedades y las actividades de investigación e innovación en Europa.
IACS lidera el WP6 “Excellence in data quality “, dirigido por Enrique Bernal-Delgado.
Proporcionará soluciones para el uso secundario fiable de los datos de salud y asistencia sanitaria con el fin de fomentar la transformación digital de los sistemas sanitarios europeos.
IACS igualmente lidera el WP7 “Connecting the dots”, dirigido por Juan González García.
Detallará las técnicas para proporcionar un uso secundario eficaz de los datos sanitarios a través del EHDS. Estas soluciones representan los elementos de interoperabilidad técnica del EHDS, de acuerdo con el Marco Europeo de Interoperabilidad.
Web: https://tehdas.eu/
Más información: cienciadedatosysalud.org/proyectos-de-investigacion/tehdas/
Health Research & Innovation Cloud – HealthyCloud
Health Research & Innovation Cloud – HealthyCloud
Comisión Europea
Coordinador: Instituto Aragonés de Ciencias de la Salud (IACS)
IP: Juan González-García
Periodo: 30 meses (inicio: 01/03/2021)
Financiado: 2.999.975€
El objetivo final es proponer un ecosistema que construya y refuerce la confianza de pacientes y ciudadanos en el uso de sus datos sanitarios para la investigación.
HealthyCloud es un proyecto que reúne a 21 organizaciones con amplia experiencia, incluidas 5 infraestructuras de investigación (ELIXIR, ECRIN, EATRIS, BBMRI y Euro-BioImaging) y 3 acciones conjuntas (InfAct, iPAAC y eHAction) relacionadas con la investigación sanitaria.
Web: www.healthycloud.eu
Más información: cienciadedatosysalud.org/proyectos-de-investigacion/healthycloud/
Population Health Information Research Infraestructure (PHIRI)
Population Health Information Research Infraestructure (PHIRI)
Comisión Europea. The European Union’s Horizon 2020 research and innovation programme No 101018317
Coordinator: Sciensano
Period: 36 months (biginning: 01/ 11/ 2020)
Fund: 424.875 €
El proyecto ‘Population Health Information Research Infraestructure’ (PHIRI), proyecto europeo de infraestructuras para el manejo de datos poblacionales en torno a la pandemia de COVID-19 se ha desarrollado a partir de la Acción Conjunta sobre Información en Salud (JA InfAct) de la Comisión Europea.
IACS lidera el WP7 “Building a federated research infrastructure for a rapid policy response”
Este paquete de trabajo proporcionará el sustrato tecnológico para apoyar el desarrollo de una infraestructura de investigación federada y que produzca resultados de investigación para una respuesta política rápida.
Además IACS participa liderando casos de uso en el WP6 “Delayed care in cancer patients”
Web: www.phiri.eu
More information: cienciadedatosysalud.org/proyectos-de-investigacion/phiri/
REDISSEC
REDISSEC: Servicios de Salud Orientados a Enfermedades Crónicas
Coordinator: José Mª Quintana López. Kronikgune
Funding: Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias RD16/0001/0007
Period: 3 años (inicio: 2017)
Program 1
Caracterización de la cronicidad y evaluación del desempeño y las políticas sanitarias en el cuidado de los pacientes crónicos
Coordinator: José Mª Quintana López
WP1: Caracterización de la cronicidad y evaluación de los cuidados sanitarios
WP2: Desempeño de los Servicios Sanitarios en respuesta a la cronicidad
WP3: Métodos para el manejo de bases de datos, análisis y comunicación de resultados
Program 2
Efectividad y coste-efectividad en el cuidado de los pacientes crónicos
Coordinator: Enrique Bernal-Delgado
WP1: Comparando intervenciones clínicas
WP2: Comparando intervenciones y políticas organizacionales
WP3: Métodos para mejorar la investigación evaluativa
Web: www.redissec.com
More information: cienciadedatosysalud.org/proyectos-de-investigacion/redissec/
Network of Excellence for the development and implementation of innovative models of integrated stroke care (ICTUSNet)
Programa Interreg Sudoe a través del Fondo Europeo de Desarrollo Regional SOE2/P1/E0623
Coordinator: AQUAS
Year 2018. Period: 3 years
Funding: Year 3: 115.050€
ICTUSnet’s general objective is promoting collaboration R&D&I, stimulating mutual learning and encouraging innovation in integrated stroke care. This is accomplished thanks to incorporating new data analysis technologies and creating a permanent network offering all the shareholders involved in the various stages of the healthcare chain the opportunity to share information, lessons learned and good practices.
Various groups and institutions in France, Spain and Portugal. The Aragon Health Sciences Institute (IACS) leads the GT3: ‘Analysing and benchmarking the care plans for patients with stroke’
Joint Action on Health Information - JA InfAct
Coordinator: Sciensano
Año 2018. Period: 3 años
Financiado: 156.101€
La Acción Conjunta sobre Información de Salud tiene como objetivo aunar todos los esfuerzos de los Estados miembros participantes, organizaciones internacionales e instituciones académicas para avanzar hacia un sistema de información en salud sostenible a nivel europeo que promueva la investigación en salud y las políticas de salud.
40 socios de 28 países europeos. IACS participa en el paquete de trabajo 10 sobre Interoperabilidad liderando el pilotaje de casos de estudio de interés para avanzar en la interoperabilidad en salud pública.
CHRODIS-PLUS: Implementing good practices for chronic diseases
Comision Europea: tercer programa de acción europea en el campo de la salud (2014-2020).
Coordinado por el Instituto de Salud Carlos III
Financiado: 43.161€
El proyecto: CHRODIS-PLUS: Implementing good practices for chronic diseases, (num. 761307) tiene por objetivo promover la implementación de innovadoras políticas y prácticas en la gestión de la cronicidad en los países de su ámbito.
Web: http://chrodis.eu/
Care for patients with chronic conditions in the NHS: time-space evolution of potentially avoidable hospitalisations by basic health area and healthcare area
PI Enrique Bernal Delgado
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias. PI 1400786
Year of beginning: 2014
Studying potentially avoidable hospitalisations (PAHs) has been adopted as a strategy for assessing the quality and the efficacy of the care given to patients with chronic conditions. The objective is to describe and map the different time-space evolution in the standardized rate and relative risk of PAHs, while attempting to establish the effect of the basic health areas (vs. healthcare area) on risk, as well as the effect of time-dependent events.
Joint Action on Chronic Diseases (CHRODIS-JA)
Addressing Chronic Diseases and Healthy ageing across the life cycle
Year of begining: 2012
BRIDGE Health Project- Platform for administrative data on health care
Year of begining: 2015
ECHO European Collaboration for Health Care Optimization
European Commission 7th FP 2009
IP Enrique Bernal
Periodo: 42 meses
Financiado: 2.750.000 €
El proyecto, concebido como un estudio piloto sobre bases de datos disponibles e indicadores validados, tiene como objetivo fundamental describir el desempeño de seis sistemas sanitarios europeos (austriaco, danés, esloveno, español, inglés y portugués).
Más información: cienciadedatosysalud.org/echo/
REDISSEC: Health Services for Chronic Conditions
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias RD12/0001/0004
Coordinado por Kronikgune
Período: 4 años
Financiado: 277.600 €
Preparation of a Divestment Strategy for the NHS Based on Monitoring Unjustified Variations in the Use of Procedures of Doubtful Clinical Value.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias. PI12/01884
PI Sandra García-Armesto
Year of begining: 2012
Time-space Evolution of Unjustified Variations in Medical Practice in the NHS.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI06/1673
PI Enrique Bernal
Year of begining: 2007
Atlas of Variations in Medical Practice in the National Health System (Consolidation and New Developments).
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI06/1673
IP Enrique Bernal
Año de comienzo: 2007
Financiado: 102.245 €
Consumption and Expenditure in Psycholeptic and Psychostimulant Drugs in the National Health System.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI07/90608
IP Julián Librero
IC Enrique Bernal
Financiado: 24.200 €
Periodo: 2008
La Seguridad de los Pacientes en el Sistema Nacional de Salud español: Validación de los patient safety indicators para su medición
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI06/90260
IP Enrique Bernal
Financiado: 72.600 €
Periodo: 2007-2008
Variations in Consumption and Expenditure in Cardiovascular Drugs in the National Health System.
Variations in Consumption and Expenditure in Cardiovascular Drugs in the National Health System
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI06/90515
IP Anselmo López Cabañas
Financiado: 20.570 Euros
Periodo: 2007
Validity of Hospital MBDS in Identifying Incident Cases of Specific Cancers: Strategies of MBDS use in assessing healthcare suppliers.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI/042489 (Proyecto Coordinado de RETICS)
IP Enrique Bernal
Financiado: 47.610 Euros
Periodo: 2004-2006
Project on Continuity of the Thematic Healthcare Services Research Network for Decision-Making in the National Health System (RED IRYSS G03/202).
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias 05/2490
(Proyecto Coordinado de RETICS)
IP Enrique Bernal
Financiado: 2.600 Euros
Periodo: 2006
Consolidation and Expansion of a Cooperative Research Model in Epidemiology and Public Health (RCESP).
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI05/2487
(Proyecto Coordinado de RETICS)
IP Enrique Bernal
Financiado: 29.000 Euros
Periodo: 2006
Variations in Knee Arthroplasty in the NHS: The influence of resources available and adverse results related to them.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI04/2489
IP Julián Librero
Financiado: 19.000 Euros
Periodo: 2005
Improvement in Drug Treatment Quality in Secondary Prevention of Ischaemic Heart Disease in Primary Care in the Autonomous Community of Valencia.
Instituto de Salud Carlos III (FIS 04/1357)
PI Peiró S
Year of begining: 2005
Research Network on Epidemiology and Public Health.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias RTIC G03/202
IP: Enrique Bernal (Coordinador del nodo del Instituto Aragonés de Ciencias de la Salud)
Year of begining: 2003
Research Group Network on Results in Health and Healthcare Services.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias RTIC G03/202
IP: Enrique Bernal (Coordinador del nodo del Instituto Aragonés de Ciencias de la Salud)
Financiado: 127.906,60 Euros
Periodo: 2003-2005
Systematic Review of the Efficacy of Interventions to Reduce Informal Caregivers’ Overload.
Evaluación Tecnologías Generalitat Valenciana 002/2001
IP: Peiró S
Year of begining: 2002
Systematic Review of the Quality of Life Following Pancreatic Transplant.
Instituto de Salud Carlos III Evaluación tecnologías 01/10002
IP: Ridao López M
Year of begining: 2002
Quality of Healthcare in Spain. Validation of Inpatient and Preventive Quality Indicators for Their Use in the Spanish National Health System.
Instituto de Salud Carlos III. Fondo de Investigaciones Sanitarias PI08/90255
IP Enrique Bernal
Financiado: 64.130 €
Periodo: 2008-2009
Edificio CIBA
Avda. San Juan Bosco, 13
50009 Zaragoza
976 715 483
atlasvpm.iacs@aragon.es
cienciadedatosysalud.iacs@aragon.es
Atlas VPM, coordinated by IACS, is recognized by the Spanish Ministry of Health and Social Services and Equality as a privileged source (“Registro de Utilidad”) for the National Health System.
